There is a growing focus and recognition around benefit of having patients and members of the public more involved in shaping and actively participating in the healthcare agenda and associated activities. This is called Patient and Public Involvement (PPI). We are hugely supportive of more of this happening within Head and Neck cancer in the UK AND we also want ensure that the voices involved are diverse and as representative as possible of the wider patient, carer and public community.
You may have direct lived experience of Head and Neck cancer as a patient or carer or you may just be passionate about helping us ensure that there is greater understanding of these cancers in the wider population and that all voices are represented.
Opportunities may include:
- Responding to surveys or questionnaires
- Participating in steering group discussions
- Attending focus groups, workshops, events
- Being an active member within research groups
- Evaluating and reviewing documents
- Acting as a co-applicant in research funding applications
AND we are working hard to make sure that those that are involved have the opportunity to be properly compensated and remunerated for their time and inputs.
In June 2023 we launched the first national Head and Neck Cancers PPI Steering Group and we invite you to join us as a founding member.
If you have any questions please contact info@oraclecancertrust.org for more information.
Follow us
Thanks for subscribing! Please check your email for further instructions.
Oracle Cancer Trust is a registered charity in England and Wales (1142037). A company limited by guarantee. Registered company in England and Wales (7125497). Registered address: 80 Coombe Road, New Malden KT3 4QS